Never ending story

I wanted to do a short check-in after four insane months. Wow! April has been an insane month. Lord, the medical drama does not let up. The quicker this nutty year is in the rearview mirror, the better for my mental well-being.

When I last posted, I told you about my pyoderma diagnosis. I am still healing from this peculiar affliction. One has closed, and I am on an autoimmune suppressant drug that seems to be helping with the healing of the other leg injury, which has shrunk down to a 2×1.98-inch wound.

My sweet loving husband and nurse

I was chugging along, minding my own business, at the beginning of April, and I started having severe pain in my right leg, which also has bigger pyoderma. I asked lovie to take me to the ER, and sure enough, I had a foot-long DVT in my leg. I decided that I wanted to get tested to see if the DVT was just because of not moving around a lot because of the pyoderma or if a genetic condition caused it. Yesterday, I found out that, sure enough, it is a genetic autoimmune disease—another one to add to my collection. I am still dealing with my liver issues with that autoimmune disease, and yesterday, I decided to change my care over to a different doctor. The medical practices seem to be bowing under the pressure of too many patients. I lost faith in my present GI practice. They would tell me they wanted to see me every 2 months, and then when I went to make the appointment, they would offer me an appointment 5 months away. They also ignored me for three weeks when I repeatedly requested guidance on my medication that had been unprescribed during my hospitalization. I still do not know if I am doing the right thing, but I must take the chance. I got to see a GI specialist with 25 years of experience instead of begging to see a PA with 10 years of experience.

Sorry that this entry is very dull, but I have been overwhelmed by trying to recover from this bombardment of weird events.

I am very excited about Lee’s visit to California next month. I miss them very much. I cannot wait to see them. I will sit in cotton wool until the date of the trip. I do not want anything to hinder our journey.

I must share how much my sweet, darling husband has picked up the slack of household duties and is my number one wound wrapper. The nurse at wound care could take a lesson from him. That is a short synopsis of my very trying beginning of the year. I will keep you posted when I have the energy to write again.

Easter Lunch

Leave a comment